Believe it or not! 5-month-old baby girl ‘turning to stone’; here’s why
In a surprising incident, a five-month-old baby girl is suffering from a rare disease due to which her body is ‘turning into stone'.
The girl named Lexi Robins, who was born on January 31 and was like other normal babies, however, she was not moving her thumb and had bigger toes.
A five-month-old baby girl from the United Kingdom is "turning to a stone" due to an extremely rare genetic condition that turns muscles into bones.
Her parents took her to the doctor. The girl was diagnosed with a rare disease called Fibrodysplasia Ossificans Progressiva (FOP), which found just one in million people.
In April, her X-ray report revealed that she had bunions on her feet and double-jointed thumbs.
This rare disease syndrome can lead to bone formation outside the skeleton but restrict movement.
People diagnosed with this disease, which has no proven treatment, can be bedridden till they turn 20 and their life expectancy is around 40 years.
Due to FOP, Lexi’s condition may get worsened if she suffers any minor trauma. Because of this rare disease, Lexi can’t receive injections, vaccination, and dental care and also can’t give birth.
"We were initially told, after the x-rays, she probably had a syndrome and wouldn't walk. We just didn't believe that because she's so strong physically at the moment and she's just kicking her legs," Lexi's mother Alex told HertsLive.
"She's absolutely brilliant. She sleeps through the night, she smiles and laughs constantly, hardly ever cries. That's the way we want to keep her," she added.
Reportedly, scientists are working to find a cure for the disorder. Also, Lexi’s parents—Alex and her father Dave have also spoken to some experts, who told them that there are active clinical trials that have proven somewhat successful for FOP.
Meanwhile, Lexi’s parents have started a fundraiser for research to find the treatment for Lexi. They have also asked other parents to check whether their children might have a similar condition.
Lexi's mother also shared a video on her Instagram account and wrote in caption, "PLEASE SHARE AND HELP US CURE FOP
HELP US TO SAVE OUR LITTLE LEXI❤️
We need to reach as many people as possible and raise awareness of FOP.
People are living with this disease without knowing they have it, causing harm to their body.
Please share on your personal, business, fashion, travel, mum, home etc accounts😘
We massively appreciate it, THANK YOU"
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